In
his recent blog post, “How Do You Get the U.S. off Life-Support?” (referring
to the growing incivility in public discourse that has been exacerbated by the
examples set before us during this most recent election cycle), Paul Louis
Metzger (disclosure: Dr. Metzger is my faculty mentor in my doctoral program)
notes the position taken by Dr. Robert Potter (again, disclosure: Dr. Potter is
the other academician reader of my dissertation/ministry project paper).
Drawing an analogy to palliative care (seeking to alleviate a patient’s
symptoms and pain, separate from addressing curative measures), Dr. Potter
seeks a solution to the pressing question, “What needs to be done?” by framing
the questions “What am I missing?” and “Who am I missing?” These are essential
questions. In pain management and end-of-life care, the holistic approach to
the mental, emotional, spiritual, and social dynamics of the patient and their
family can often be even more important than the physical processes being
treated.
As I
have written elsewhere, addressing these multiple areas of concern is
difficult, requiring in hospice care an interdisciplinary team that (by law)
must at least include a physician, a medical social worker, and a pastoral counselor/chaplain
in addition to the hospice manager. The intensive and extensive level of care
provided through hospice during the final weeks and months of life is nearly
impossible to provide elsewhere. Likewise, it often may seem as though the answers
to “What am I missing?” and “Who am I missing?” are not only daunting in the
depths of their complexity, they may be endless in breadth. It may seem
impossible to determine, much less include all that is missing, and all who are missing from the equation. In
such cases, we may be tempted to take license to disengage from the process,
allowing ourselves the escape clause: “We’ve done all that we can do.”
Why
would I demand of us that we try any harder than that—either in treating a
dying patient or in seeking to bring unity to a fragmenting society? Because I
believe that beneath the questions “What am I missing?” and “Who am I missing?”
lies a motivation that is, in my experience, so often unclear in both discussions.
The question “Why is this pursuit so terribly important to you?” might be
boiled down cynically to “Who cares?” But whether conservative or liberal,
whether focused more exclusively on any few or encompassing all the “moral
intuitions” that Dr. Potter cites (care, fairness, liberty, loyalty, authority,
and sanctity), the answer is simply this: “You
care.” For different reasons, at different levels, and from sometimes vastly
divergent perspectives, it is impossible to deny that we have clear and
passionate positions on most of the issues being discussed.
If
you doubt whether you have such passions, simply put yourself in the place of
those who are adversely affected by any of the issues. Start by asking yourself
what levels of pain relief and symptom management (think uncontrollable nausea,
for example) you would be willing to forego if your hospice team needed to cut
back on their agency’s overtime. Questions of healthcare rationing may bore
you. But faced with a decision on whether to pursue expensive treatments that
have only the most miniscule chance of curing your disease? You may find
yourself paying closer attention to the discussion.
The
unifying issue for many participating in hospice care, as providers as well as
for patients and their families, is that we generally acknowledge the reality
of mortality. We not only provide care to the dying and bereaved, we number
ourselves among them. Even when we are not among the most imminently dying, we
willingly bereave ourselves, intentionally forming close personal friendships
with people we know are going to die soon. The unity we find in that mutual
mortality and shared grief allows us to discuss matters that nearly all others
in our circles of influence work hard to avoid. (Most of them wish that we
would avoid those topics, too.) But in caring about the issues, despite
divergent positions, relative to hospice care, we are unified by our commitment
to solidarity with and around the patient and their soon-to-be-bereaved family,
knowing that we eventually will be one or the other or both.
So next,
in the broader conversation about our national priorities, I would ask that you
think about liberties you particularly enjoy. Would you care if they were being
as maligned and restricted as those of others? Try considering your economic
well-being threatened by those who would re-zone their neighborhoods to
eradicate “your kind.” Imagine your religious affiliation (or lack thereof) as
a reason to discredit and persecute you. And visualize yourself amidst the
confrontation that would occur if armed authorities denied you your right to
express your position on these or any other matters. You do care…if it’s your ox that’s being gored.
We all care. We merely subvert our
engagement of these issues behind a pretense
of apathy. Apathy, the lack of caring, is not what I find to be the cause
of inaction. Instead, we choose not to engage on the basis of what I would call
the economy of futility. We do not invest in solutions because we believe the
problems to be insoluble. Therefore, we fail to recognize the undeniable unity
of our concerns. At their core, our conflicts are universally compelling, if only we would admit how much we care
about our own positions on the issues.
Will
we agree on these positions? If you demand that I agree with your position, or
I demand that you agree with mine, probably not. But we must agree, if we will
admit that these are issues on which we each cannot help but have positions.
Then, and perhaps only then, we might be willing to listen, understand, and
collaborate in ways that resolve our conflicting positions on the issues
themselves. Only then can we claim that “we’ve done all that we can do.”